Global Lyme Alliance column

Since 2013, Jennifer has written a weekly column for Global Lyme Alliance (www.globallymealliance.org/blog), covering nearly every aspect of living with Lyme disease and other long-haul illnesses. Peruse all of her backlogged columns here, organized by topic.


Lyme 101

Things I Didn't Know About Lyme Disease Until I Got It

Five Reasons Why You Should Care About Lyme Disease

Top Ten Myths About Lyme Disease

I Just Got Diagnosed With Lyme Disease: What Should I Do?

The Importance of Digging Deep

Unraveling Spirochetes

A Call to Unite, Not Divide

Books and Resources That Have Helped Me On My Journey

The Spectrum of Lyme

What's In a Name? When Talking About Lyme Disease, It Matters

We Are the World: What I Learned About the Global Health Threat of Lyme Disease

Bursting the "Woods of New England" Bubble

Partisan Politics in Lyme Disease


Lyme Disease Prevention

Don't Forget It's Tick Season, Too!

End of Summer Doesn't Mean End of Tick Season

Enjoying the Summer While Living With Lyme

Managing Fear of Ticks During the Summer

Ticks Are a Year-Round Threat: Don't Let Lyme Become Your Holiday Surprise

Fear of Lyme Reinfection

Tips For Lyme Disease Prevention at Camp


Lyme Disease Diagnosis and Testing

I Just Got Diagnosed With Lyme Disease: What Should I Do?

Not All Lyme Rashes Are Created Equal

The Danger of "Waiting and Seeing" with Lyme Disease

Did You Pull a Tick Off of You? Here's Why You Should Keep It

Lyme: The Differential Diagnosis

When You Suspect You Have Lyme, But Your Test Comes Back Negative

RSV, COVID, or the flu? As a Lyme Patient, This Isn't My First Time With a Misdiagnosis

The Importance of Digging Deep

Lyme Isn't a Choice

What's Luck Got To Do With Lyme Disease?

Victim Blaming and Lyme Disease


Lyme Disease Treatment

I Just Got Diagnosed With Lyme Disease: What Should I Do?

No Set Protocol

Risk-Benefit Analysis of Tick-Borne Disease Treatment

Intravenous Antibiotics for Lyme: Pros, Cons, and the Lived Experience

My Lyme Disease is in Remission. How Do I Keep it That Way?

The Importance of Being Vigilant

What Does it Mean to Herx?

Natural Isn't Always Better: Getting Real About Pharmaceutical Medication

Seven Tips to Organize Your Medications


Physical Symptoms of Lyme Disease

Not All Lyme Rashes Are Created Equal

The Aches and Pains of Tick-Borne Illness

When Lyme Disease Takes Away Your Energy

Lyme Disease and the Eyes

Lyme Disease and Fatigue

Crashing After Activity with Lyme Disease

Gastrointestinal Issues with Lyme Disease

Excessive Thirst and Lyme Disease

Stop the Itching! Lyme and Hives

Lyme Disease and POTS

Not All Headaches Are Alike: What's Causing Yours?

What is Air Hunger, Anyway?

Keep It Simple: You're Just Tired

A Matter of the Heart

Hot, Hot, Hot: What a Heat Wave Means for Lyme Patients


Neurological Symptoms of Lyme Disease

Lyme Brain: The Science and the Experience

Living With Lyme Brain

Dealing With Brain Fog

Breaking Down Lyme Disease and the Blood-Brain Barrier

What Helps Improve Cognitive Function for Lyme Patients?

Lyme Symptom: Nervous System Inflammation

Lyme and the Limbic System

Lyme Disease and Sensory Overload

Where Am I? Disorientation and Lyme Disease

Lyme and Memory Loss

Managing Burning Extremities

Rest: The Most Important Message of My Dreams

Not All Headaches Are Alike: What's Causing Yours?

To Sleep, Perchance to Dream

You're Not Crazy--You Have Lyme

Short-Circuited By Lyme Disease


Other Tick-Borne Diseases

Is it Lyme or a Co-infection? Knowing the Difference Can Make a Difference

Have You Heard of the Tick-Borne Disease Babesiosis?

The Tick-Borne Disease Babesiosis Can Cause Neurological Symptoms

Differentiating Between Babesia and COVID-19 Air Hunger

Could You Be Co-infected With Bartonella?


Emotional Impact of Lyme and Long-Haul Illness

How Does Having Lyme Disease Affect Your Relationships?

Lyme and Post-Traumatic Stress Disorder

Lack of Respect for Those With Lyme Disease

Victim Blaming and Lyme Disease

What it Means for a Patient to be Heard

Lyme Disease and Depression

Anxiety and Lyme Disease

Beating the Winter Blues

The Comfort of Solidarity

Mixed Messages: Finding Your Truth

Hugging It Out: How Physical Connection Helps Us Heal

When Nothing's Funny, Even Simulated Laughter Can Be Good Medicine

A Different Kind of Denial

The Danger of Denial

Dealing With Lyme-Related Fear

The Quiet Desperation of Chronic and Mental Illness

Fear of Lyme Reinfection

Fighting 'Fight or Flight'

Fear of Relapse

It's Okay To Be Angry

Seasonal Fear of Missing Out

Laughter Really Can Be the Best Medicine


Living Well with Lyme and Other Long-Haul Illness

When Lyme Interrupts Your Life Path

The Most Helpful Thing in My Lyme Journey

How to Promote Healing from Lyme Disease

My Lyme Disease is in Remission. How Do I Keep it That Way?

The Value of Independence for the Chronically Ill

Tips for Time Management When Living with Chronic Illness

The Impatient Patient

Saving Spoons: Not Just of Energy, But of Time

Sometimes the Memory is Better Than the Real Thing

Dreaming of the Past--and the Future

Staying the Course When the End is in Sight

The Holidays: Ways to Participate When You Can't Be There in Person

Lessons From Lyme: Lockdown Isn't Forever

Living With Lyme Disease: The Beauty of Adaptation

Living in the Present While Worrying About the Future

What Lyme Patients Can Teach Us About the New Normal

Cooling Off When Swimming Isn't an Option

The Role of Technology for Lyme Disease Patients

Calculating Risks

Keeping the Big Picture in Mind: Don't Overlook Your Other Health Issues

The Leaps of Lyme

Gratitude for the Long Game

The Difficulty--and Importance--of Asking For Help

Rest: The Most Important Message of My Dreams

Traveling with Tick-Borne Illness

Building Resilience

Reframing Restrictions

The Time Warp of Tick-Borne Illness

Treating Instead of Denying Yourself

Spring Really Will Come

Be a Victor, Not a Victim

Don't Settle for Good Enough

Can't Versus Shouldn't

Starting Small in the New Year

Hope For the Holidays

The Value of Visualization

Avoiding Reminders Until You're Ready

Holidays: Relishing the In-Between Times

What Can the Red Sox Teach Us About Surviving Tick-Borne Illnesses?

The Idea of Hope

Enjoying the Summer While Living With Lyme

Honoring the Past, Embracing the Future

Adding Joy and Pleasure to Life, No Matter When

Seasons of Lyme

Learning to Love Lyme: A Lesson in Self-Understanding

Making the Holidays Work For You

"And, Not But": Taking Power Back With One Simple Word

Post Traumatic Growth: Reframing the Trauma of Chronic Illness

A Lymie's View From 39

Taking Lyme One Day-Minute-Second At a Time

Getting Involved: When Your Intention Says Yes, But Your Body Says No

Keep It Simple: You're Just Tired

Ground Hog Day: Casting a Shadow On Lyme Disease

The Double-Edged Sword of Being Bored

Looking Back, Looking Ahead, Giving Thanks

Locking Up the Obstacle of Guilt

It's Not All Or Nothing

Spreading the Light of Gratitude

Never Give Up

Falling Back: It's Not Real

Halloween: No Costume Necessary

Searching For Home When You're Stuck in Lyme Land

Tick, Tick, Tick: The Race Against Time

Has Lyme Sidelined Your Summer?

Lyme and the Olympics Part Two: Of Dashed Dreams and New Lives

Lyme and the Olympics Part One

The Bigger Picture: Part Two

The Bigger Picture: Part One

Valentine's Day: A Celebration of Self-Love

Reclaiming My Identity: Part Two

Reclaiming My Identity: Part One

Staycationing


Self-Advocacy and Physician Communication

What it Means for a Patient to be Heard

Medical Gaslighting and Lyme Disease

You Know Your Body Best

How To Be An Advocate With Your Non-Lyme Doctor

On Disclosure: When and How Much to Tell

Why Agency is Important For Lyme Warriors

A Different Kind of Denial

The Dangers of Playing Doctor

To Be Blunt: How Chronic Illness Made Me More Direct

Getting Involved: When Your Intention Says Yes, But Your Body Says No


COVID-19 and Other Co-Morbidities

I Have Lyme Disease. Should I Get the COVID-19 Vaccine?

Lyme and Covid-19 Panel: Follow up Q and A

Corona With a Twist of Lyme: Part 4

Corona With a Twist of Lyme: Part 3

Corona With a Twist of Lyme Part 2

Corona With a Twist of Lyme

Long Haul COVID-19 Brings Attention to Persistent Lyme

Reactivated Infections: A Possible Piece of the Chronic Illness Puzzle

RSV, COVID, or the flu? As a Lyme Patient, This Isn't My First Time With a Misdiagnosis

Differentiating Between Babesia and COVID-19 Air Hunger

Lessons From Lyme: Lockdown Isn't Forever

What Lyme Patients Can Teach Us About the New Normal

We're Not Out of the Woods Yet

The Comfort of Solidarity

Speaking Up for the Immunocompromised

What a Difference a Year Makes

Are Mold and Mycotoxins Compromising Your Recovery?


Vitamins and Diet

The Lyme Diet

Gastrointestinal Issues with Lyme Disease

Candida and Lyme

Lyme Disease and Vitamin D

Treating Instead of Denying Yourself

You Get What You Pay For

Stabilizing Blood Sugar During a Season of Sweets


Adjunct Therapies

Adjunct Therapies That Have Helped With My Tick-Borne Illness

Are Mold and Mycotoxins Compromising Your Recovery?


Costs and Insurance

Financing Tick-Borne Disease


Managing School and Work

School-Related Difficulties With Lyme Disease

On Disclosure: When and How Much to Tell

Scheduling Life With Lyme Disease

Tackling To-Do Lists When You're Too Tired To Do So


Gender and Lyme

Gender and Lyme

Tribute to the Men of Lyme

Lyme Moms: We Salute You


For Friends and Family

Wondering What to Say to a Lyme Patient? Try These Conversation Starters

The Difficulty--and Importance--of Asking For Help

Why Agency is Important For Lyme Warriors

Books and Resources That Have Helped Me On My Journey

Saluting the Caretakers of Lyme Patients

The Pressure of Platitudes: Patients Are Only Human

Care Versus Overcare: A Fine Line


FAQs

Lyme Warrior Q and A (31) (Transmission time, babesiosis air hunger, book publication)

Lyme Warrior Q and A (30)--bonus--with video! (Diagnosis, testing, and bloodwork)

Lyme Warrior Q and A (29) (Tick bites and co-infections)

Lyme Warrior Q and A (28) (Self-image, memory loss)

Lyme Warrior Q and A (27) (Lyme and mood swings, EBV, body aches)

Lyme Warrior Q and A (26) (Lyme treatment and dormant spirochetes)

Lyme Warrior Q and A (25) (Dental issues and Lyme, concussions and Lyme, pursuing dreams)

Lyme Warrior Q and A (24) (Pulsing antibiotics, rashes and hives, insomnia)

Lyme Warrior Q and A (23) (Anti-inflammatory diet, GLA's Peer Mentorship program)

Lyme Warrior Q and A (22) 

Lyme Warrior Q and A (21)

Lyme Warrior Q and A (20) (Remission, Lyme and Alzheimer's)

Lyme Warrior Q and A (19) (Lyme and vaccines, remission, EBV)

Lyme Warrior Q and A (18) (Tick bites, being bedridden, migraine treatment)

Lyme Warrior Q and A (17) (Reframing future and finding work with chronic illness)

Lyme Warrior Q and A (16) (Antibiotics, memory loss, remission)

Lyme Warrior Q and A (15) (Herxheimer reactions, moving to tick-endemic areas)

Lyme Warrior Q and A (14) (Anxiety, chronic symptoms)

Lyme Warrior Q and A (13) (Migratory pain, chronic Lyme, treatment)

Lyme Warrior Q and A (12) (Mental health, antibiotics)

Lyme Warrior Q and A (11) (Memory loss, traveling with Lyme)

Lyme Warrior Q and A (10) (Herxheimer reactions, Lyme depression)

Lyme Warrior Q and A (9) (Lyme diet, working with Lyme)

Lyme Warrior Q and A (8) (Waxing and waning symptoms, Lyme neuropathy)

Lyme Warrior Q and A (7) (Finding balance, brain health, co-infections)

Lyme Warrior Q and A (6) (MRIs, SPECT scans, Herxheimer reactions)

Lyme Warrior Q and A (5)

Lyme Warrior Q and A (4) (Bullseye rashes, brain fog, IV antibiotics)

Lyme Warrior Q and A (3) (Diagnosis, blood tests, hypoglycemia)

Lyme Warrior Q and A (2) (Relapsing, testing, muscle and nerve damage)

Lyme Warrior Q and A (1) (Herxheimer reactions, fatigue, natural remedies)


GLA and Other Research and Advocacy Highlights

Review of "I'm Not Crazy, I'm Sick"

2022: Another Milestone Year for GLA

2020: The Lyme Year in Review

2020 Vision for Lyme Warriors

What Avril Lavigne's Virtual #FightLyme Concert Taught Me

2019: The Year in Review

Highlights from ILADS 2019

We Are the World: What I Learned About the Global Health Threat of Lyme Disease

Highlights From ILADS Boston 2017